BALTIMORE, April 7 -- Successful pain management
requires effective communication and an ongoing partnership between pain
patients and healthcare providers. The American Pain Foundation (APF)
today launched the TARGET Chronic Pain Initiative to encourage better
communication between these two partners and thereby improve pain
management.
The program acknowledges that clinicians receive little
education on pain management during their medical training -- including
diagnosis and treatment -- and face time constraints during patient
appointments. Simultaneously, patients don't always know how to describe
their pain and often don't recall how their pain has varied over time. In
addition, research has shown that because pain is identified principally
through self-reports, patients who have difficulty communicating with
clinicians are at particular risk of undertreatment. All together, these
lead to increased difficulty in diagnosing and treating pain, and hinder
patients' ability to be an active participant in their own care.
The new APF initiative addresses this predicament by
providing both patients and providers with resources to focus on a common
language to distinguish and describe the main components of chronic pain
-- including persistent and breakthrough pain. Persistent pain is
continuous pain that is present for most of the day, persists for more
than three months and is usually treated with medication taken
around-the-clock. Breakthrough pain (BTP) -- a sudden flare of pain that
"breaks through" the relief provided by around-the-clock medication used
to treat persistent pain -- is an often- misunderstood aspect of chronic
pain that requires a tailored strategy for care.
"Good pain management begins with clear and
comprehensive communication between the patient and the healthcare
provider. By giving patients and their healthcare providers tools that use
consistent language to describe the complex phenomenon of chronic pain,
patients and clinicians can interact more productively. This is a critical
step to facilitate accurate diagnosis and treatment of chronic pain,"
commented Chris Miaskowski, PhD, RN, FAAN, APF board member, and chair,
Department of Physiological Nursing at the University of California, San
Francisco. Dr. Miaskowski contributed to the development of the new tools.
New Tools Designed to Facilitate Communication Between
Patients and
Clinicians
APF's new initiative includes two tools, the TARGET
Chronic Pain Notebook for patients and the TARGET Chronic Pain Card for
clinicians. The pieces complement each other and are designed to guide
patients and providers into using a common vocabulary when describing
persistent and breakthrough pain. This is the first time that APF has
developed materials to support clinicians, and is based on the
organization's belief that clear and consistent two-way communication
between patients and providers is essential to good pain management.
Focus-group testing conducted with chronic pain
patients revealed that patients describe their pain in many different and
personal ways, and are often unconcerned with specific clinical
descriptions. However, often patients do not receive the relief they need
because they have difficulty communicating the difference between
increased levels of persistent pain vs. breakthrough pain episodes. The
tools help patients to identify the types of pain they are experiencing --
and the terms used to describe the pain -- to more effectively and
efficiently communicate with their medical team and achieve optimal pain
control.
"We hope to improve the success of pain management for
patients by making it easier for them to describe their pain and get the
help they need to achieve relief, and to improve their ability to function
on a day-to-day basis," says Claudia Campbell, BSN, RN, CCRN, Manager of
Pain Services, Intermountain Healthcare in Salt Lake City, Utah. "One
important part of describing pain is recognizing that there are different
components that can occur simultaneously, like persistent and breakthrough
pain." Ms. Campbell contributed to the development of the TARGET Chronic
Pain Card.
TARGET Chronic Pain Notebook -- Designed as a workbook
for pain patients or their caregivers, the notebook provides various
methods to record the daily pain experience and treatment regimen, in
words and graphics. Pain sufferers should share the completed notebooks
with their clinicians to provide information about the long-term pain
experience, efforts to relieve the pain, and areas of need. Research
demonstrates that information recorded by patients in notebooks/charts
helps healthcare professionals understand the long-term impact of the
patient's pain, thus assisting them in making treatment decisions.(ii)
TARGET Chronic Pain Card -- Created as a quick
reference for healthcare professionals in pain assessment and management,
the card features key questions to ask patients about pain, tips on
treatment strategies based on accepted principles of pain management, and
charts that can be used as visual aids to explain the components of
chronic pain to patients.
Both pieces can be ordered from APF by calling
1-888-615-PAIN (7246) or through the Web site at
http://www.painfoundation.org/.
The Target Chronic Pain Notebook can be downloaded directly from the site.
APF already has distributed a limited number directly to oncologists and
pain specialists.
Impact of Chronic Pain
More than 50 million Americans live with serious
chronic pain that interferes with day-to-day functioning in their
personal, social, and work lives. If pain is untreated, it can worsen
other health problems, slow recovery, and interfere with healing. Followed
by cancer and heart disease, chronic pain is the third leading cause of
physical impairment in the United States.(iii) Up to 86 percent of
Americans suffering from chronic pain experience breakthrough pain -- even
when the persistent pain is well managed.(iv)
About APF
The American Pain Foundation is an independent,
non-profit organization serving people with pain through information,
advocacy, and support. Our mission is to improve the quality of life for
people with pain by raising public awareness, providing practical
information, promoting research, and advocating to remove barriers and
increase access to effective pain management.
The American Pain Foundation is solely responsible for
the content, and maintains editorial control, of all materials and
publications it produces. APF gratefully acknowledges those who support
our work. The publications announced in this press release were
underwritten with an unrestricted educational grant from Cephalon, Inc.
(i) American Pain Society. Principles of Analgesic Use in the Treatment
of Acute and Cancer Pain. 5th ed. Glenview, IL: American Pain
Society; 2003.
(ii) McMillan C. Breakthrough pain: assessment and management in cancer
patients. British Journal of Nursing. 2001;v.10,n.13:860-866.
(iii) American Academy of Physical Medicine and Rehabilitation; American
Chronic Pain Association
(iv) Fine PG, Busch MA. Characterization of breakthrough pain by hospice
patients and their caregivers. J Pain Symptom Manage.
1998; 16(3):179-183.
Contact: Lennie Duensing
American Pain Foundation
845.676.3300
Beth Townsend
Cooney/Waters Group
646.456.4082