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Note:  Conquer Chiari is not affiliated with, nor endorses  or recommends, any specific support group.  Conquer Chiari does not have chapters and does not run any support groups.  The following is only a partial list and is provided for the convenience of the Chiari community.

If you run a support group, or are looking to start one, and would like to be listed on this page, simply email the details to director@conquerchiari.org

Existing Groups

Looking To Start

Chiari Crusaders of Southwest Michigan
Meeting the second Saturday of every month
Meeting Time:  3-5pm
Location:  Fred Russ Forest
20419-20999 Marcellus Hwy
Decatur, MI 49045
Contact::
Lisa - lisa.friend@eimotech.com   269-317-5487
Tonya -  
momand2kidswithchiari@yahoo.com    269-635-2564
 
New Mexico
Contact:  Joleen Baughman
bjtlbaughman@aol.com
AZ Syringo & Chiari Support Group
Meets:  Third Thursday of every month.
Time: 11:00 – 1:00
Location: St. Joseph’s Outpatient Rehab Center  114 W. Thomas Rd.
East of the hospital off of Thomas & 1st Ave on the NW corner.
Contact:  azsyringochiari@cox.net or visit www.azsyringochiari.blogspot.com
Debbie (623) 561-6906 or Dianna (602) 973-4508
Southwest Texas
Contact:  Melanie
melpmyers@gt.rr.com
Chiari of Connecticut
Contacts:  Lisa Savitt & Lisa Vassallo
chiariofct@yahoo.com
No specific meeting dates or times.  Meetings are set up via email to all members.
Greater Atlanta/Georgia
Contact:  Kristin
krisgrij@yahoo.com
Chiari People of PA Support Group
The Reading Hospital & Medical Center
6th Ave. & Spruce St.
West Reading, PA 19611
R Lobby Conference Room #14
First Saturday of Every Month
10:00 AM to 12 Noon
Contact: Renee Tobias @ chrysanthemumsr4me@yahoo.com

 

Lincoln/Omaha, NE
Contact:  Roy
roypenny@rocketmail.com
Chiari & Syringomyelia Support of the Lehigh Valley
Meets: First Sunday of every month, 2:- 4:pm
Banko Building at Lehigh Valley Hospital/Muhlenberg campus, Schoenersville Rd., Bethlehem
Contact: Denise:  Greythndz@yahoo.com
 
Southern CA
Contact:  Jennifer
jenniferlbd@cox.net
Knoxville, Tennessee
 2nd Thurs of the month 6-8pm.
Starts in October, 2010
For details, contact:  Stephanie
mattystephy7323@aim.com
 
Northern CA
Contact:  Jacqueline
jacquelinehuggitt@ymail.com
Northeast Chiari Support Group
Kingston Group:  Meetings TBD
Albany Group:  Meets every 3rd Saturday of the month, 2 pm
Pittsfield, MA Group:  Meetings TBD
Canaan, CT Group:  Meetings TBD
Contact:  Jodie Churchill
northeastchiarisupport@hotmail.com
Tennessee Area
Contact:  David
dtyree1001@gmail.com
 

Northern Kentucky/Southern Indiana
K.A.R.E.S. for Chiari
Meets every 2nd Saturday of the month at Baptist Hospital East, Education Center, Room 2H
For questions email: KaresforChiari@insightbb.com
Find us on Facebook!

Southeast Iowa
Contact:  Bobbie Saben-LeMatty desperatehousewivesrus@yahoo.com

 

Northwest Indiana Support Group
Meetings:  First Monday of every month from 7-9pm at:
Center for Advanced Clinical Studies
Behind Methodist Hospital
200 East 89th Avenue
Merrillville, Indiana
Contact  Cyndi Vanek
(219) 365-1065
vanek4@comcast.net
 
Central New Jersey Chiari and Syringomyelia Support Group
Meets:  Every 3rd Thursday of each month from 7-9PM
Riverview Medical Center
1 Riverview Plaza
Red Bank, NJ 07701
Administrative Conference Room (next to cafeteria)
Contact:  Brian Murphy
bmurphywalk@comcast.net
 
Chiari Families Of The South Support Group
Meets:  Last Saturday of every month
12:00 - 2:00 PM.
30-A Resorts (formally Criollas)
Scenic HWY 30-A
170 E County HWY 30-A
Grayton Beach FL
Contact: Debbie Loomis-Earles
graytongirl@gmail.com
850-585-3622
 
 
Chiarians Unite
Meets:  First Tuesday of each month
On-line in a private chat room
Contact:  Nicole Hutnik
Nicole@chiariansunite.org  
www.chiariansunite.org
 
 
Western New York
Next Meeting:  TBD
Contact:  Agnes at sweetpea324@verizon.net  
Put WNY Chiari in subject line
 
Southeastern Michigan Chiari Support Group
Meets last sunday of every month at 6:30pm
Panera Bread On Rochester Rd & Auburn.
Contact:  Sschroeder6167@gmail.com
or Devin.kalisz@gmail.com

 
 

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