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Note:  Conquer Chiari is not affiliated with, nor endorses  or recommends, any specific support group.  Conquer Chiari does not have chapters and does not run any support groups.  The following is only a partial list and is provided for the convenience of the Chiari community.

If you run a support group, or are looking to start one, and would like to be listed on this page, simply email the details to director@conquerchiari.org

Existing Groups

Looking To Start

AZ Syringo & Chiari Support Group
Meets:  Third Thursday of every month.
Time: 11:00 – 1:00
Location: St. Joseph’s Outpatient Rehab Center  114 W. Thomas Rd.
East of the hospital off of Thomas & 1st Ave on the NW corner.
Contact:  azsyringochiari@cox.net or visit www.azsyringochiari.blogspot.com
Debbie (623) 561-6906 or Dianna (602) 973-4508
Northern Kentucky/Southern Indiana
Next Meeting on Aug 28th, 3-5p at Baptist East Hospital Education Center, Room 2H.
Louisville, KY

Contact:  Cris Miller 502-544-0505
or Richard Knepfler RIchk1@insightbb.com
Chiari of Connecticut
Contacts:  Lisa Savitt & Lisa Vassallo
chiariofct@yahoo.com
No specific meeting dates or times.  Meetings are set up via email to all members.
Southwest Texas
Contact:  Melanie
melpmyers@gt.rr.com
Chicago Area Support Group
Meets:  No set meeting dates or place; usually meets in Arlington, IL
Contact:  Carolyn Richardson
Carolyn.J.Richardson@gmail.com
Greater Atlanta/Georgia
Contact:  Kristin
krisgrij@yahoo.com
Chiari & Syringomyelia Support of the Lehigh Valley
Meets: First Sunday of every month, 2:- 4:pm
Banko Building at Lehigh Valley Hospital/Muhlenberg campus, Schoenersville Rd., Bethlehem
Contact: Denise:  Greythndz@yahoo.com
 
Lincoln/Omaha, NE
Contact:  Roy
roypenny@rocketmail.com
Northeast Chiari Support Group
Kingston Group:  Meetings TBD
Albany Group:  Meets every 3rd Saturday of the month, 2 pm
Pittsfield, MA Group:  Meetings TBD
Canaan, CT Group:  Meetings TBD
Contact:  Jodie Churchill
northeastchiarisupport@hotmail.com
Southern CA
Contact:  Jennifer
jenniferlbd@cox.net
Northwest Indiana Support Group
Meetings:  First Monday of every month from 7-9pm at:
Center for Advanced Clinical Studies
Behind Methodist Hospital
200 East 89th Avenue
Merrillville, Indiana
Contact  Cyndi Vanek
(219) 365-1065
vanek4@comcast.net
Northern CA
Contact:  Jacqueline
jacquelinehuggitt@ymail.com
Central New Jersey Chiari and Syringomyelia Support Group
Meets:  Every 3rd Thursday of each month from 7-9PM
Riverview Medical Center
1 Riverview Plaza
Red Bank, NJ 07701
Administrative Conference Room (next to cafeteria)
Contact:  Brian Murphy
bmurphywalk@comcast.net
Tennessee Area
Contact:  David
drtyree@peoplepc.com

 

Chiari Families Of The South Support Group
Meets:  Last Saturday of every month
12:00 - 2:00 PM.
30-A Resorts (formally Criollas)
Scenic HWY 30-A
170 E County HWY 30-A
Grayton Beach FL
Contact: Debbie Loomis-Earles
graytongirl@gmail.com
850-585-3622
 
 
Chiarians Unite
Meets:  First Tuesday of each month
On-line in a private chat room
Contact:  Nicole Hutnik
Nicole@chiariansunite.org  
www.chiariansunite.org
 
 
Western New York
Next Meeting:  Tuesday, February 16th.7:00 pm
Perkins Restaurant: he address is 8444 Transit Rd. , East Amherst  NY
Contact:  Agnes at sweetpea324@verizon.net  
Put WNY Chiari in subject line
 

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Disclaimer:  This publication is intended for informational purposes only and may or may not apply to you.  The editor and publisher are not doctors and are not engaged in providing medical advice.   Always consult a qualified professional for medical care.  This publication does not endorse any doctors, procedures, or products.

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